I am a wife, a mom of 3 children, and a follower of Jesus Christ. While my life is filled with many adventures this blog is only about my son Jacob and autism. I like to think of it as my therapy and hope that maybe some moms out there will read it and feel not-so-alone.
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Sunday, May 5, 2013
Autism In Our Home
a child with Autism is often very challenging, but the reward that it yields
far exceeds anything that I have ever experienced. My son, Jacob, has severe autism and speech
and language disorder.He has very
little functional speech and does not like contact with most people.Jacob shakes his heads rapidly and often
needs deep pressure to calm down.He
spins in circles and is fascinated with climbing inside of cabinets.We often find him walking backwards in the
house rolling his arms in front of his face and making strange noises.Sometimes we catch him staring at doorknobs
or running in circles around the sofa in peculiar patterns.
has a very hard time expressing his wants and needs, even non verbally.Each day he works with therapists to learn
simple noun identification and commands such as “sit” and “clap”.Each
morning my oldest two children and I dance and sing “I Love You So Much” for
Jacob while he eats breakfast.Jacob’s
therapist gave us songs with common phrases in order for him to learn
them.This has become a wonderful
morning routine for our family.If I
forget to sing, my big kids always remind me, “Mommy, we didn’t sing the I love
you song for Jakey yet”. This has become a very special tradition. As we spend
time with Jacob, we often find ourselves having to “decode” what Jacob is
trying to tell us.Jacob’s language
consists of humming and making noises to the tunes of songs or things that he
hears us say.If I tell Jacob “good boy”
he says, “ooo oiy” in the same tune.We
find that if we get on his level and pay attention to him closely, sometimes we
can understand what he wants.It’s amazing
to witness my other kids patiently and compassionately trying to understand
Jacob and play with him in his own unique way.As a mom I find that it is so important to take the time to love each of
my children in the way that they need to be loved, even if that means “decoding” a
different language.For our family,
loving Jacob means learning his “language of autism”.
reminds me of God.God loves us in such
a perfect way.As much as I love Jacob
and would go to the ends of the earth for him, my Father in Heaven loves him
more.He knows every thought in his mind
and every word or utterance on his tongue.What a relief that is to me.
I don't have to figure it all out. Thank you, God, for knowing Jacob more than I ever will and for loving
Jacob more than I ever could.I pray
that you can guide me on how to teach him all about YOU.
1 O Lord, you have searched me and
2 You know when I sit down and when
I rise up;
you discern my thoughts from afar.
3 You search out my path and my
and are acquainted with all my ways.
4 Even before a word is on my
behold, O Lord, you know it altogether.
5 You hem me in, behind and before,
and lay your hand upon me.
6 Such knowledge is too wonderful
it is high; I cannot attain it.
7 Where shall I go from your Spirit?
Or where shall I flee from your presence?
8 If I ascend to heaven, you are
If I make my bed in Sheol, you are there!
9 If I take the wings of the morning
and dwell in the uttermost parts of the sea,
10 even there your hand shall lead
and your right hand shall hold me.
11 If I say, “Surely the darkness
shall cover me,
and the light about me be night,”
12 even the darkness is not dark to
the night is bright as the day,
for darkness is as light with you.
13 For you formed my inward parts;
you knitted me together in my mother's womb.
14 I praise you, for I am fearfully
and wonderfully made.[a]